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Apr 28, 2011

Dancing Jack Man!

I know all parents think this. However. My child has some ridiculous dance moves. Truly. He can always find the beat, he is a natural! Well here is the proof.

Apr 27, 2011

Jack - update and good news!

Today Jack had his 3rd Modified Barium Swallow via Fluoroscopy. His appointment took place at the Children's Hospital campus in Aurora, Colorado. Every time we visit I am thankful that while Jack's issues are severe they are not life threatening. You truly experience a gut check with each moment you spend there. You see Children's hospital does not segregate the sick kids, you see it all, my heart breaks during the time we spend there. I pray for those babies and their families.

So, I had a good feeling about today. I put out the A.P.B. on FB and you all came through! Jack has been healthy, active, experimenting with new foods and I was praying we would be able to move past the beverage thickeners. Jack has been suffering from a condition called Pharyngeal dysphagia, when swallowing regular liquids a portion was slipping into his lungs. Bad bad bad. In January we had a re-check, fail. I wanted so badly for him to pass, he must pass - he will pass! I dressed him in his lucky Rockies baseball shirt (thanks mom mom and pop pop) and his lucky green coat (thanks cousin cjb) I was truly working the mojo today! We checked in at Radiology and Jack was enjoying the toys sans big sis.



I think he wanted to call Sydney to tell her about all the cool toys and huge fish tank.


Look Syd I drive! Nope you can't take it away from me, hahahaha!
Now in radiology with the fluoroscope machine. It's a pretty amazing piece of technology.
Jack sits here.

We hold him and "attempt" to feed him a bottle. The techs have mixed up liquids containing barium sulfate which contains radioactive solution. This allows us to see him swallow on a monitor live. It's essentially an open MRI.
This is the last picture I took because Jack had a melt down. He did not want to drink, he did not want to sit and he did not want anything to do with this procedure! ugh. The doctor is in the dark blue. Daddy is right in front of Jack attempting to give him the bottle. The next 15 minutes consisted of me holding Jack, sitting on the bench, trying to force down the solution via cup, straw, bottle, and spoon. When it was all said and done the barium was all over him and me.

Results:
1/2 Strength liquids - no aspiration, no pooling, no reflux, no laryngeal penetration. = PASS
Thin liquids - no aspiration, no pooling, no reflux, no laryngeal penetration. = PASS

PASS!! PASS!! PASS!!

Jack Jack man did it! What does this mean? We get to phase him off the thickeners, no cold turkey, and within the next month he will be on regular thin liquids! Yahoo! He'll actually be able to drink water, juice, milk, eat regularly! It's amazing!

Way to go buddy! We are so proud of you!

--best

Apr 25, 2011

yeah, why not?

These are name bubbles . I got them last summer for Syd and Jack while attending daycare. Great for bottles, sippy cups, water bottles, clothes, etc. They don't come off in dishwasher or in laundry, sweet! Cute huh?



Here is what is NOT so cute. See the sheet below of missing stickers? Try the entire packet, missing.
Found.



Yes she found them and decided to make me a picture, with ALL. OF. THEM. ugh! So cruel to yell at your kid for something they thought was nice. Insert visual of money going down the toilet. ahhhhhhhh! Kids ya gotta love em right. right? right? right.



The only way to redeem yourself? Get your brother to act adorable the very next minute, pure kryptonite. Here are some cute ones of the monkeys in their new Rockies hat's courtesy of mom mom and pop pop.



JACK JACK MAN






Apr 17, 2011

Photo Session!

We took the kids to Picture People at the mall on Sunday for some pictures. Jack 1 year, Sydney almost 4 years. The studio was nice, secluded, and I picked 2 different "looks" for them. Sydney was a natural, as you can see. Jack wasn't a fan! He hated the camera and the flash and ran off set every chance he got. I think we got some pretty good ones. T and I were sweating our butts off trying to get some smiles and to keep Jack still. Now the only problem is finding enough wall space for these beauts! Enjoy!































--best
 
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